Well! Good news!
Kaden passed his second swallow study as of April.
He did so wonderful, not a single drop fell into his tiny little lungs (:
I am so proud of him. He can now have full bottle feeds every day, any time he wants, any way he wants! And he is fully loving every bit of it.
As of today, he weighs 8 lbs 5 oz.
That's half the size he was when he was born!
Just took him 6 months to catch up (;
You should see him now.
He's kicking & throwing his rattle around like it's nobody's business. NOT TO MENTION he's talking now!
Well, a bit (:
He says alot of soft sounds and will sometimes make some bubbles for mommy. About an hour ago he actually FULL BLOWN laughed for me! It was so ADORABLE!! and heart breaking at the same time.
He is finally on a PAM schedule where he receives at Cook's Children's Hospital in Forth Worth, TX.
The hospital is kindof disorganized. The staff literally have the slightest bit of knowledge for communication. Ugh. Frustrating.
But, they are the only ones who will do his treatments. So therefore, I have to hold my tongue.
OH! We're in the process of getting together a "sleep study" for him, just to be cautious. I hear from alot of mothers sleep apnea is very common with OI.
Might as well catch it while there's somethin to catch.
Anyways, I'm not really feeling well so I think I'll go lie down with Kaden.
I'll post more later!