Updates

Today,

I am becoming more and more frustrated. It seems as though we need more
help out here, more specialists who KNOW what the hell they are doing.
Like for example, ECI (Early Childhood Intervention) visited us this afternoon.
Apparently, the dietician thinks we need to bump Kaden's feed up 5mL every week.
Which is sortof impossible considering his belly is the size of a grapefruit. Literally.
She seems to think he's growing wayyy too slow and it doesn't add up to the standards of
the formal growth chart.
All I'm thinking is: If a baby has a bone disease, meaning the bones are very brittle and
gaining alot of weight would mean putting more pressure on those bones,
 would that not  be dangerous?! Dumbass?

Sometimes I wish I was ghetto and not polite AT ALL.

But, regardless of what she says I stick with my gut feeling, and it tells me
his little belly hurts after he eats even 55mL every feed. So, lastly.. she can suck it.

As for tomorrow,

we are truely EXCITED because Kaden is having his second swallow
study since he was 3 weeks old. Now, basically a swallow study is an x-ray of the esophogaus
 (spell check?) that will be able to inform the OT if he is aspirating his formula still.
(Milk going into the lungs). His last swallow study showed that just a teeny weeeny bit
would fall out of the lining of his throat into his lungs, making a "junky" sound in his
chest and throat. We're hoping since now he is 5 months old (GOSH he's getting so old, so fast!)
that he will have built up a stronger development of his swallow. Therefore, he will be able
to FINALLY bottle feed again.

:D

And removement of the mickey button WILL BE MADE!

XD
So, stick with me and I will let you guys know how it goes!
Love ya!

xoxoxo